The purpose of this post is to track my life since the diagnosis of Moyamoya. Moyamoya is a rare disorder of cerebral vessels so I hope this could also be helpful to the others as well.
I had my first headache back in early 2019 when I was 24 years old. Since then, I began to have it sporadically. It was (and still is) hard to predict. But all headaches were the same. Painful near the ears, effects on eyesight, usually take the whole day or half of the day to be gone, vomit, and end with fatigue and sleep. However, I didn't plan to go to the doctor for the matter because if I looked for it, the result would show it could be migraine and I have people with migraine around me. It was also because most, if not all, of headaches appeared on holidays.
Everything changed in October 2023 when I had headache on weekdays. My office told me to go to the doctor, which I did. The GP told me to MRI my brain and by November 2023, I was diagnosed with Moyamoya.
The GP transferred me to the Neurology Department of the hospital where I live. The Professor of the Neurology Department had me three further tests: Angiogram, Neuropsychology test, and MRI with Carbon Dioxide.
I met the Prof again after all these tests. He told me there's nothing urgent according to the tests. But he suggested bypass surgery, which I considered as the last option. He told me to have a test out of town. I guess they'd let me know the date.
The update will come later.
Jac Blackerwine Community Member 
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